She has a younger sister named Ellie Wineland. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. [11], On August 26, 2018, Wineland underwent a double lung transplant. Search by Name. Jace Prescott Cause of Death, Date of Death, and More! Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Find an Obituary. She had a popular YouTube channel, gave She was also a speaker for the motivational TEDx Talks.. The family received immense support from friends, and community. Read full obituary. I didnt realize how much I didnt expect to live this long. "It's a GO!!!" Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. Died: Sunday, September 2, 2018 (Who else died on September 2?). "Claire's gift is huge, I want your family to know that your daughter is a hero. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. Youll be missed deeply. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. I would like to acknowledge Claire Wineland who passed away last night. I want to see what happens in life. YouTube star Claire Wineland has died a week after having a lung transplant. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. The medical team that tended to her became family. It hurts everything inside of me to make this video, she said into the camera. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. I am 17 years old and a senior in high school. She wanted to help other affected families too. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. A self-described goofball, she usually engaged people with humor and optimism. Im not an innocent and Im not a child. Menu. Claire Wineland is shown on April 4, 2016 in Rancho Palos Verdes, California. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. Her foundation said she had died peacefully, surrounded by family. Wineland stated she did not have the energy or the money to take the case to court. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The social media sensation died Sunday, a week after she suffered a stroke following surgery for a double lung . Life isnt just about being happy. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. According to her, pitying ill people was disempowering them. She appeared in an episode of Red Band Society and in the documentary series My Last Days. Despite suffering from a critical illness, she maintained a positive attitude to life. But last month, as . It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. La Jolla, California CNN . "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. ", Claire Wineland, reflecting on her outlook on life. She watched one of her doctors squirm as he gave her the safe-sex talk. Wineland uploaded videos in her personal vlog. Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. I had to be honest, she once explained. Read about our approach to external linking. "I had to be honest," she once explained. James Arness Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Wineland was a singer, artist, and composer. She was 21. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. But Claire took on the evaluation process to get on the list with laser focus. Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! After the death of Claire Wineland, her family intends to carry on the noble work started by her. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. "See y'all on [the] other side. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to the Cystic Fibrosis Foundation. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. She played hide-and-seek with nurses and left explosions of glitter in her wake. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. She was a wonderful person and the world . Claire Wineland was born on April 10, 1997, in Austin, Texas. She was placed in a medically-induced coma, for 16 days. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. Founded a charity to help others suffering from the disease. The cause of death was a massive. I'm Claire's little sister and I'd just like to say that I" I'm Claire's little sister and I'd just like to say that I really really appreciate all the kind" 115k Likes, 5,583 Comments - Claire Wineland (@claire.wineland) on Instagram: "hey this is Ellie (@ellebell_74 ).. You are an inspiration and brought joy to many. Claire was born with a severe disease-Cystic fibrosis (CF), a condition that affects breathing and digestion. There is no passionate rant to be had here I am just happy and thought I would let you all know. All Rights Reserved. Get breaking news alerts& today's headlines inyour inbox. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. This time, she was raw and allowed herself to cry. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. CNN Sans & 2016 Cable News Network. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. She watched one of her doctors squirm as he gave her the safe-sex talk. She passed away peacefully, with her parents by her side. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. Support Families offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Im just really overwhelmingly grateful for all of this. I'm willing to deal with anything.". A supportive space for people & families affected by Cystic Fibrosis. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. By asking for it, she said, she could relax and get in the headspace for whatever would come next. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. The Plain Dealer. To face each day, Claire Wineland undergoes hours of breathing treatments. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. Senior producer, Legacy.com. The BBC is not responsible for the content of external sites. Claire Wineland (1997 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. The BBC is not responsible for the content of external sites. Youll be missed deeply. Her organs were made available for transplant. Get to know the real life super hero behind our bubbly Snap identity. "Go enjoy it, 'cause there are people fighting like hell for it.". Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. When she was unable to create videos due to declining health, the company cut her off. Claire was an activist, author, TEDx Speaker, social media. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. "It hurts everything inside of me to make this video," she said into the camera. Now that Im looking at it as something I have to do Im willing to deal with anything.. She was not in any pain and the medical Less than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to the United Network for Organ Sharing, which operates the nations organ transplant system. "I didn't realize how much I didn't expect to live this long. However, her illness forced her to leave the platform in 2017. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. She decorated her hospital room, and posted inspirational messages on its walls. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. A quarter of Claire's life was spent in the hospital. We invite you to share condolences for Claire Wineland in our Guest Book. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Sympathy . [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. Then came the call that offered new life. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. It's not about how you feel second to second," she said. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. We would like to show you a description here but the site won't allow us. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. But not long after the successful surgery, hope turned to fear. The moment you realize it's not about avoiding suffering; it's about making something from your suffering, you're incredibly freed. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. Notable quote: I do these talks to make a point. Read about our approach to external linking. Snap Greene is the alter-ego of 13 year old Claire Wineland. She had a popular YouTube channel, gave . Shed worked hard to get there, was focused on her self-care and getting stronger. In one of the last videos Claire posted, she went where she hadnt before. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. View this post on Instagram "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. A quarter of Claires life was spent in the hospital. Obituaries Section. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Find an Obituary . Claire Wineland (19972018), inspiring speaker lived with cystic fibrosis, Jay Briscoe (19842023), Ring of Honor wrestler, C.J. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. You are an inspiration and brought joy to many. "If my biggest problem in life was to be healthy, I'd be incredibly bored. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. She has gone on to become an advocate for others suffering from the disease she has had since birth. And allowed herself to cry she decorated her hospital claire wineland sister death, and posted messages! Convention and Exhibition, you 're incredibly freed her last alerts & today 's inyour... Inside of me to make this video, she was also a speaker for content. 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